What are the benefits of the cure for people with ichthyosis?
M-A.M: After participating in the study, a patient wrote to me “ I can live. I can breathe through all the pores of my skin. I’ve never experienced what I’m feeling now – soft, manageable skin that doesn’t hurt... " It was her first treatment, she was 66 years old and regretted not having known about it before.
Anne Audouze: In fact, skin with ichthyosis can be very tough and cracked. Water and treatments make the skin supple and reduce inflammation. Here, patients relax and discover a treatment adapted to their symptoms, to comfort and improve the appearance of their skin. At last.
M-A.M: As we’ve gained experience, we have been able to develop particularly suitable treatments and equipment. Such as a scalp shower or pulsating bath jets that combine the mechanical effects of water with the properties of thermal spring water. Body wraps and hydrating facial treatments are also a key staple of the treatment programme. But we want to make our therapies enjoyable as well as being effective and rigorous. This is important when you have sore skin. Hence our treatment rooms open out to the outdoors and nature, there are games in the rest rooms, the creams are pleasant to apply. We have set up “ alternatives to scratching ” workshops, workshops that give children more independence with their treatments and activities for the rest of the family. This allows it to benefit everyone.